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info@sclerodermasociety.co.uk Tel: 020 7000 1925 Registered Charity No: 286736 |
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About The Scleroderma Society • Trustees • Advisory Panel • Volunteers Find out more about Scleroderma Join the Scleroderma Society Useful Links Fundraising Awards News and Events Invitation to the Scleroderma Society U.K. sub forum Message Board Local Groups Contact us Scleroderma Soc Assistance Fund Personal Journeys |
 Help Line: The Scleroderma Society Helpline is 0800 311 2756. It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back. Calls from UK mainland are free. nonprofit International Scleroderma Network (ISN)www.sclero.org Scleroderma Society U.K. sub forumMore... Disclaimer:Click here Our New Booklet: Understanding & Managing Scleroderma Information Leaflets Our Information Leaflets have been redesigned and revised. Click here to download them. Delivering Quality and Value across Musculoskeletal Pathways:Improving efficiency and patient care across local services 26th May 2010, London More... Medifocus Digest Alert on Scleroderma:listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More... Benefits and grants info:Directgov public services all in one place inlcuding benefits, tax credits etc. Benefit enquiry line: Provides advice and information for disabled people and carers on the range of benefits available. - 0800 882 200 Warm Front:Warm Front makes homes warmer, healthier and more energy-efficient. To see if you qualify for a Warm Front Grant or other benefits: - 0800 072 9006 Home heat helpline:If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand. Freephone 0800 33 66 99 or visit homeheathelpline.org.uk Other Associations:BSSA 0121 455 6532 (british sjogrens syndrome association) Fibromyalgia association 0870 345 2322 Lupus UK 01708 731251 PAH-UK 0800 3898 156 NHS Direct: 0845 4647 Prescription PromiseClick here to find out more FESCA NewsletterJune 2010 newsletter Sponsor Online:
  Calendar of Events: Click here for our calendar of events. 2010 Christmas Cardsclick here...  web shop! Donate Online:Click here to make a donation. Collecting Boxes: Get free collecting boxes! More» Buy a Rose! Order The Scleroderma Society Rose. More»Also see our Scleroderma Society Rose Notelets. More» |
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Scleroderma Society TrusteesAmanda Thorpe I became involved with the Society as the Essex contact because I wanted to meet other people with scleroderma. It's wonderfully therapeutic to laugh with people facing the same difficulties as you, and believe me we have a lot to laugh about! I wanted to get more involved being aware the Society relies solely on volunteers so I am now also a trustee, webmaster and local contact coordinator . The Society was there for me in the early days and I want to make sure it is for others. I now believe that there's still life, good life, to be had after scleroderma it just looks nothing like you thought it would but that's not necessarily a bad thing. Amanda Thorpe
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