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info@sclerodermasociety.co.uk Tel: 020 7000 1925 Registered Charity No: 286736 |
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About The Scleroderma Society Find out more about Scleroderma • Raynaud's, ulcers & calcinosis • Information Leaflets • Understanding Scleroderma • Publications • Presentations • Articles • FAQs • UK Scleroderma Study Group Join the Scleroderma Society Useful Links Fundraising Awards News and Events Invitation to the Scleroderma Society U.K. sub forum Message Board Local Groups Contact us Scleroderma Soc Assistance Fund Personal Journeys |
 Help Line: The Scleroderma Society Helpline is 0800 311 2756. It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back. Calls from UK mainland are free. nonprofit International Scleroderma Network (ISN)www.sclero.org Scleroderma Society U.K. sub forumMore... Disclaimer:Click here Our New Booklet: Understanding & Managing Scleroderma Medifocus Digest Alert on Scleroderma:listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More... Benefits and grants info:Directgov public services all in one place inlcuding benefits, tax credits etc. Benefit enquiry line: Provides advice and information for disabled people and carers on the range of benefits available. - 0800 882 200 Warm Front:Warm Front makes homes warmer, healthier and more energy-efficient. To see if you qualify for a Warm Front Grant or other benefits: - 0800 072 9006 Home heat helpline:If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand. Freephone 0800 33 66 99 or visit homeheathelpline.org.uk Other Associations:BSSA 0121 455 6532 (british sjogrens syndrome association) Fibromyalgia association 0870 345 2322 Lupus UK 01708 731251 PAH-UK 0800 3898 156 NHS Direct: 0845 4647 Prescription PromiseClick here to find out more 2009 FESCA NewsletterDownload the Feb 2009 newsletter London Marathon 2009:Well done Susie! More... Calendar of Events: Click here for our calendar of events. 2009 Christmas Cardsclick here... web shop! Donate Online:Click here to make a donation. Sponsor Online:
We have signed up with Justgiving.com a great on-line sponsorship site. Collecting Boxes: Get free collecting boxes! More» Buy a Rose! Order The Scleroderma Society Rose. More»Also see our Scleroderma Society Rose Notelets. More» |
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UK Scleroderma Study GroupThis is a list of Specialists who are part of the UK Scleroderma Study Group, the group meets regularly to discuss and coordinate scleroderma trials and treatments for people with scleroderma in the UK. The group also collaborates with Scleroderma Specialists throughout the World including the Scleroderma Clinical Trials Consortium (SCTC) and EUSTAR. Click here to download the current list Using the list to find a specialist If you find a Doctor in your area make a note of what kind of Specialist they are, for example if you have Localised scleroderma (Morphoea, Linear or En Coup de Sabre) you will not require a respiratory specialist but a Dermatologist or Rheumatologist and if you are looking for a young person with scleroderma you will require a Paediatrician. Once you have found a specialist in your area you will need a referral, which might be from your present consultant or from your GP. It is helpful that both are aware that you wish to be referred. You will need Adobe Reader on your computer to read the list.
Click the image below to download a free copy. 
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