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info@sclerodermasociety.co.uk Tel: 020 7000 1925 Registered Charity No: 286736 |
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About The Scleroderma Society Find out more about Scleroderma Join the Scleroderma Society Useful Links Fundraising Awards News and Events Invitation to the Scleroderma Society U.K. sub forum Message Board Local Groups Contact us Scleroderma Soc Assistance Fund Personal Journeys |
 Help Line: The Scleroderma Society Helpline is 0800 311 2756. It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back. Calls from UK mainland are free. nonprofit International Scleroderma Network (ISN)www.sclero.org Scleroderma Society U.K. sub forumMore... Disclaimer:Click here Our New Booklet: Understanding & Managing Scleroderma Information Leaflets Our Information Leaflets have been redesigned and revised. Click here to download them. Delivering Quality and Value across Musculoskeletal Pathways:Improving efficiency and patient care across local services 26th May 2010, London More... Medifocus Digest Alert on Scleroderma:listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More... Benefits and grants info:Directgov public services all in one place inlcuding benefits, tax credits etc. Benefit enquiry line: Provides advice and information for disabled people and carers on the range of benefits available. - 0800 882 200 Warm Front:Warm Front makes homes warmer, healthier and more energy-efficient. To see if you qualify for a Warm Front Grant or other benefits: - 0800 072 9006 Home heat helpline:If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand. Freephone 0800 33 66 99 or visit homeheathelpline.org.uk Other Associations:BSSA 0121 455 6532 (british sjogrens syndrome association) Fibromyalgia association 0870 345 2322 Lupus UK 01708 731251 PAH-UK 0800 3898 156 NHS Direct: 0845 4647 Prescription PromiseClick here to find out more FESCA NewsletterJune 2010 newsletter Sponsor Online:
  Calendar of Events: Click here for our calendar of events. 2010 Christmas Cardsclick here...  web shop! Donate Online:Click here to make a donation. Collecting Boxes: Get free collecting boxes! More» Buy a Rose! Order The Scleroderma Society Rose. More»Also see our Scleroderma Society Rose Notelets. More» |
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Personal JourneysWelcome to the Scleroderma Society's personal journey page. Here is your opportunity to share you experience of scleroderma with others! Whether you have scleroderma, an interest in it or are the care giver of someone with it you have a journey to share. From your difficult experience someone else may reap a blessing and from your positive one encouragement. When reading the journeys of others, remember that everyone's experience with scleroderma is different. One personal journey may involve many unpleasant symptoms and surgeries but this does not mean you will encounter these on your journey. Remember that scleroderma is unique to everyone and everyone with scleroderma is unique! Just familiarise yourself with our personal journeys policy and you're good to go! If you wish to share your personal journey please complete the personal journey submission form Click a name below to read their personal journey |