info@sclerodermasociety.co.uk
Tel: 020 7000 1925
Registered Charity No: 286736


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 Help Line:Advice line
The Scleroderma Society Helpline is 0800 311 2756.
It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back.
Calls from UK mainland are free.

 nonprofit International Scleroderma Network (ISN)
www.sclero.org

  Scleroderma Society U.K. sub forum
More...

 Disclaimer:
Click here

 Our New Booklet:
Understanding & Managing Scleroderma




 Medifocus Digest Alert on Scleroderma:
listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More...

 Benefits and grants info:
Directgov
public services all in one place inlcuding benefits, tax credits etc.
Benefit enquiry line:
Provides advice and information for disabled people and carers on the range of benefits available.
- 0800 882 200

 Warm Front:
Warm Front makes homes warmer, healthier and more energy-efficient. 
To see if you qualify for a Warm Front Grant or other benefits:
- 0800 072 9006

  Home heat helpline:
If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand.
Freephone 0800 33 66 99 or visit homeheathelpline.org.uk

 Other Associations:
BSSA 0121 455 6532
(british sjogrens syndrome association)
Fibromyalgia association
0870 345 2322
Lupus UK 01708 731251
PAH-UK 0800 3898 156

 NHS Direct: 0845 4647 

 Prescription Promise
Click here to find out more

 2009 FESCA Newsletter
Download the Feb 2009 newsletter

 London Marathon 2009:
Well done Susie! More...

 Calendar of Events:calendar
Click here for our calendar of events.


 2009 Christmas Cards
click here...

 web shop!





 Donate Online:
Click here to make a donation.

 Sponsor Online:
We have signed up with Justgiving.com a great on-line sponsorship site.



 Collecting Boxes:
collection boxes Get free collecting boxes! More»





 Buy a Rose!
buy a roseOrder The Scleroderma Society Rose. More»

Also see our Scleroderma Society Rose Notelets. More»




News

 

Do you or someone you know suffer from an undiagnosed medical complaint which is affecting your quality of life? Are you desperate to find the cause? Shine TV would like to hear from anyone interested in taking part as a contributor in a new pilot for BBC One where we take successful applicants through a range of tests in order to diagnose the condition.  

If interested please contact Kate on diagnosis@shine.tv with a description of your symptoms and an explanation as to how they are affecting your life.

Please be advised that the Scleroderma Society is not involved in any aspect of the programme and has no connection with either Shine TV or the BBC. It is entirely to the discretion of the individual whether they choose to volunteer or not.

 

WORLD SYSTEMIC SCLEROSIS CONGRESS

11 - 13 February 2010.

Registration contact:
Chantal Lemieux Phone: 39-0-552-881
Fax: 39-0- 552-480-246
Email: sclerosis2010@aimgroup.it
Web: www.aim-internationalgroup.com/2010/sclerosiscongress/

Click here for details

 

World Arthritis Day

We are pleased to announce that the 2009 survey "Let`s work together" is on-line and we would really appreciate your help! Please fill it in and share with colleagues and other organisations - visit http://www.worldarthritisday.org/survey.php

The aim of this year is to highlight some of the issues associated with work based on the experiences and perspectives of people with rheumatic diseases, employers and healthcare professionals to generate news stories for WAD and identify positive ways of working together. The survey has been developed with three separate, but comparable questionnaires, for:

  • People with rheumatic diseases
  • Physicians and allied health professionals working with people with rheumatic diseases
  • Employers


The more people that fill in the survey in your country, the stronger the results and potential media opportunities for your national WAD campaign will be.

The survey has been translated into 18 languages!


For more information and other exciting projects please visits our website: www.worldarthritisday.org .



Shop online and raise money for the Scleroderma Society

We have launched a new online fundraising webshop.

The Scleroderma Society is asking its supporters to shop online at http://buy.at/sclerodermasociety and raise money at no extra cost for the society.

Over 100 retailers are accessible through the webshop, including Tesco, Marks & Spencer, John Lewis and Waterstones. Many retailers provide exclusive offers to the webshop, such as discounts or offering free delivery to the customer, providing more reasons for supporters to buy products through the webshop.

The webshop is straightforward to use and no technical knowledge is required. Look out for special offers. For example, Tesco are offering £5 for every new customer who makes a groceries transaction.

The webshop facility is such a simple but effective idea. We receive a commission on each purchase you make. Donating to our organisation couldn't be easier!

 

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