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info@sclerodermasociety.co.uk Tel: 020 7000 1925 Registered Charity No: 286736 |
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About The Scleroderma Society Find out more about Scleroderma Join the Scleroderma Society Useful Links Fundraising • Help Us Raise Money • Webshop • Collecting Boxes • Calendar of Events • Make a Donation • Raise Money Everyclick • Recent Successes • Christmas Cards • Buy a Rose • Rose Notelets • London Marathon • Leaving a Legacy Awards News and Events Invitation to the Scleroderma Society U.K. sub forum Message Board Local Groups Contact us Scleroderma Soc Assistance Fund Personal Journeys Chief Executive |
 Help Line: The Scleroderma Society Helpline is 0800 311 2756. It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back. Calls from UK mainland are free. LONDON MARATHON 2011Find out more... WALK FOR SKIN 2011Find out more... 2011 Christmas Cardsclick here...  nonprofit International Scleroderma Network (ISN)www.sclero.org Scleroderma Society U.K. sub forumMore... Disclaimer:Click here Our New Booklet: Understanding & Managing Scleroderma Information Leaflets Our Information Leaflets have been redesigned and revised. Click here to download them. Delivering Quality and Value across Musculoskeletal Pathways:Improving efficiency and patient care across local services 26th May 2010, London More... Blue Badge Reforms :More... Medifocus Digest Alert on Scleroderma:listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More... Benefits and grants info:Directgov public services all in one place inlcuding benefits, tax credits etc. Benefit enquiry line: Provides advice and information for disabled people and carers on the range of benefits available. - 0800 882 200 Warm Front:Warm Front makes homes warmer, healthier and more energy-efficient. To see if you qualify for a Warm Front Grant or other benefits: - 0800 072 9006 Home heat helpline:If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand. Freephone 0800 33 66 99 or visit homeheathelpline.org.uk Other Associations:BSSA 0121 478 0222 (british sjogrens syndrome association) Fibromyalgia association 0870 345 2322 Lupus UK 01708 731251 PAH-UK 0800 3898 156 NHS Direct: 0845 4647 Prescriptions Prepayment and Exemption:Click Here... FESCA NewsletterJune 2010 newsletter Sponsor Online:
  Calendar of Events: Click here for our calendar of events. web shop! Donate Online:Click here to make a donation. Collecting Boxes: Get free collecting boxes! More» Buy a Rose! Order The Scleroderma Society Rose. More»Also see our Scleroderma Society Rose Notelets. More» |
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London MarathonSociety and Marathon background info: (PDF) (MS Word)
We have filled all five of the places for 2011 but look forward to hearing from people who would be interested in a place for 2012. The application process for the 2012 race will open in September 2011, so please contact us for an application form then. All runners will receive a special Scleroderma Society running vest, fundraising support, training advice, a "Meet the Expert Training Day" in January in London, organised by the London Marathon, giving you the opportunity to find out more about running, training and nutrition, as well as a discount voucher for Adidas running kit. The London Marathon is an exciting event, a wonderful challenge, and a rewarding experience which will stay with you for a lifetime. Running the 26.2 miles of a marathon and raising funds for charity is a very worthwhile personal challenge and we are immensely appreciative and proud of anyone who undertakes this venture on our behalf. To register your interest, please either phone the office on 020 7000 1925 or send an email to susie@sclerodermasociety.co.uk 2009 London Marathon - our runner's story
The Scleroderma Society supports people with scleroderma and their families by providing:
We also work to promote awareness of scleroderma among the medical profession and general public in order to improve early diagnosis and prognosis. We are a founder member of FESCA (Federation of European Scleroderma Associations), working to forward the cause of people with scleroderma on a European level. |
The Scleroderma Society now has a Gold Bond in the London marathon! After many years of being on the waiting list, we are delighted that we now have a Gold Bond and our first Gold Bond runners will make their marks in the April 2011 London Marathon. This is absolutely fantastic news and will bring about the opportunity to forward two of our primary aims: raise awareness of scleroderma and raise funds for research.