info@sclerodermasociety.co.uk
Tel: 020 7000 1925
Registered Charity No: 286736


About The Scleroderma Society
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Scleroderma Society U.K. sub forum

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 Help Line:Advice line
The Scleroderma Society Helpline is 0800 311 2756.
It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back.
Calls from UK mainland are free.

 nonprofit International Scleroderma Network (ISN)
www.sclero.org

  Scleroderma Society U.K. sub forum
More...

 Disclaimer:
Click here

 Our New Booklet:
Understanding & Managing Scleroderma




 Medifocus Digest Alert on Scleroderma:
listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More...

 Benefits and grants info:
Directgov
public services all in one place inlcuding benefits, tax credits etc.
Benefit enquiry line:
Provides advice and information for disabled people and carers on the range of benefits available.
- 0800 882 200

 Warm Front:
Warm Front makes homes warmer, healthier and more energy-efficient. 
To see if you qualify for a Warm Front Grant or other benefits:
- 0800 072 9006

  Home heat helpline:
If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand.
Freephone 0800 33 66 99 or visit homeheathelpline.org.uk

 Other Associations:
BSSA 0121 455 6532
(british sjogrens syndrome association)
Fibromyalgia association
0870 345 2322
Lupus UK 01708 731251
PAH-UK 0800 3898 156

 NHS Direct: 0845 4647 

 Prescription Promise
Click here to find out more

 2009 FESCA Newsletter
Download the Feb 2009 newsletter

 London Marathon 2009:
Well done Susie! More...

 Calendar of Events:calendar
Click here for our calendar of events.


 2009 Christmas Cards
click here...

 web shop!





 Donate Online:
Click here to make a donation.

 Sponsor Online:
We have signed up with Justgiving.com a great on-line sponsorship site.



 Collecting Boxes:
collection boxes Get free collecting boxes! More»





 Buy a Rose!
buy a roseOrder The Scleroderma Society Rose. More»

Also see our Scleroderma Society Rose Notelets. More»




Local Groups

Welcome to the Local Groups section!

If you are not already part of your local group why not contact your local contact and find out more details? You don't have to be a member of the society to join a local group.

Thanks to our local contacts we have groups meeting in many parts of U.K. but sadly in some areas we have no local contact and therefore no pportunity for people with scleroderma to meet others who understand how they feel, not just about the disease but themselves. If there's no group in your area why not start one? For that you would need to be a member so that we can put you in touch with members in your area and support you effectively.

I have been the Essex contact since late 2007 and still think it's a fabulous privilege to host the group. I have met wondeful people who have given me support, information and lots of fun and laughs. In turn I have been able to support them and think it's marvellous that from my difficult experience someone else can reap a blessing! My husband wants to meet with other care givers so they can support each other as those of us with scleroderma do. If you're a carer why not start a local group?

If you want anymore information about local groups contact your local contact and if you want any information about starting either a local group or a local carer's group you can always contact me.

Your local group contacts are:

Essex   
Amanda Thorpe Tel: 01702 344925
Email: amanda@sclerodermasociety.co.uk

Hampshire & West Sussex
Steve and Liz Holloway on 01243 539466 
Email: lizemail99@btopenworld.com

Kent
Amanda Thorpe Tel: 01702 344925
Email: amanda@sclerodermasociety.co.uk

Lancashire
Sheila Procter Tel: 01282 429004
Email: yewtrees@talktalk.net

London & South East
Amanda Thorpe Tel: 01702 344925
Email: amanda@sclerodermasociety.co.uk

Scotland
Frances Bain on 0131 477 1122

Suffolk & North Essex
Jacky March
Email: serendipity@freebie.net

North Wales
Kate Owen 01492 515834
Email address kate.owen09@btinternet.com

South Wales
Belinda Thompson 02920 612690
Email: bigb263@yahoo.com


I look forward to hearing from you and take care.

Amanda Thorpe
amanda@sclerodermasociety.co.uk


Look at our Calendar to find dates of events in your local area.

If you are interested in joining an existing local group, please contact the person whose name appears on the page for your area.

If you are interested in starting a local group where you live, please contact us.



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