 |
info@sclerodermasociety.co.uk Tel: 020 7000 1925 Registered Charity No: 286736 |
 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
|
||||
 |
 |
 |
 |
 |
|
||||||||||||||
 |
|
||||||||||||||||||
|
About The Scleroderma Society Find out more about Scleroderma Join the Scleroderma Society Useful Links Fundraising Awards News and Events Invitation to the Scleroderma Society U.K. sub forum Message Board Local Groups Contact us • Contact a Member Scleroderma Soc Assistance Fund Personal Journeys |
 Help Line: The Scleroderma Society Helpline is 0800 311 2756. It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back. Calls from UK mainland are free. nonprofit International Scleroderma Network (ISN)www.sclero.org Scleroderma Society U.K. sub forumMore... Disclaimer:Click here Our New Booklet: Understanding & Managing Scleroderma Medifocus Digest Alert on Scleroderma:listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More... Benefits and grants info:Directgov public services all in one place inlcuding benefits, tax credits etc. Benefit enquiry line: Provides advice and information for disabled people and carers on the range of benefits available. - 0800 882 200 Warm Front:Warm Front makes homes warmer, healthier and more energy-efficient. To see if you qualify for a Warm Front Grant or other benefits: - 0800 072 9006 Home heat helpline:If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand. Freephone 0800 33 66 99 or visit homeheathelpline.org.uk Other Associations:BSSA 0121 455 6532 (british sjogrens syndrome association) Fibromyalgia association 0870 345 2322 Lupus UK 01708 731251 PAH-UK 0800 3898 156 NHS Direct: 0845 4647 Prescription PromiseClick here to find out more 2009 FESCA NewsletterDownload the Feb 2009 newsletter London Marathon 2009:Well done Susie! More... Calendar of Events: Click here for our calendar of events. 2009 Christmas Cardsclick here... web shop! Donate Online:Click here to make a donation. Sponsor Online:
We have signed up with Justgiving.com a great on-line sponsorship site. Collecting Boxes: Get free collecting boxes! More» Buy a Rose! Order The Scleroderma Society Rose. More»Also see our Scleroderma Society Rose Notelets. More» |
  |
Scleroderma Society Assistance FundThe trustees have set up an Assistance Fund for members of the Society. Although applications must come from and include a member, non-members can benefit from the award as well. It is hoped that the fund will help members with expenses they are unable to meet and have arisen as a result of having scleroderma.
The Fund will not accept applications for travel to/from hospital as there is government assistance for this at www.direct.gov.uk , where you should search for “NHS travel costs”. Application forms must be completed for every request and requests over £100.00 will have to be substantiated with additional paperwork such as bank statements, appointment letters etc. The trustees will decide upon each application and will confirm the outcome in writing, however if an application is denied, no explanation as to why will be given. This is to deter the information being used to make bogus claims. . Our helpline call takers will be able to take requests about making an application but they will not be aware of how any application is progressing, whether it will be accepted and why one has been declined so please do not telephone the helpline for this information. Claims have to be concluded within three months of the initial application and will be closed if they are not. Once closed, the application will not be reopened and no further application for the same reason will be accepted. A member may make no more than two applications per year, with the year commencing from the date of the first application. If you have any queries or wish to make an application, please email amanda@sclerodermasociety.co.uk . Take care Amanda Thorpe Trustee |