info@sclerodermasociety.co.uk
Tel: 020 7000 1925
Registered Charity No: 286736


About The Scleroderma Society
Find out more about Scleroderma
Join the Scleroderma Society
Useful Links
Fundraising
Awards
News and Events
Invitation to the
Scleroderma Society U.K. sub forum

Message Board
Local Groups
Contact us
   • Contact a Member
Scleroderma Soc Assistance Fund
Personal Journeys
Chief Executive
 Help Line:Advice line
The Scleroderma Society Helpline is 0800 311 2756.
It is available between 9.00 am and 9.00 pm. At other times please leave a message and we will call you back.
Calls from UK mainland are free.

 LONDON MARATHON 2011
Find out more...

 WALK FOR SKIN 2011
Find out more...

 2011 Christmas Cards
click here...xmas cards






 nonprofit International Scleroderma Network (ISN)
www.sclero.org

  Scleroderma Society U.K. sub forum
More...

 Disclaimer:
Click here

 Our New Booklet:
Understanding & Managing Scleroderma





 Information Leaflets
Our Information Leaflets
have been redesigned and
revised.
Click here to download them.



 Delivering Quality and Value across Musculoskeletal Pathways:
Improving efficiency and patient care across local services 26th May 2010, London More...

 Blue Badge Reforms :
More...

 Medifocus Digest Alert on Scleroderma:
listing of medical journal articles in MEDLINE, about research, clinical trials, latest treatments More...

 Benefits and grants info:
Directgov
public services all in one place inlcuding benefits, tax credits etc.
Benefit enquiry line:
Provides advice and information for disabled people and carers on the range of benefits available.
- 0800 882 200

 Warm Front:
Warm Front makes homes warmer, healthier and more energy-efficient. 
To see if you qualify for a Warm Front Grant or other benefits:
- 0800 072 9006

  Home heat helpline:
If you're worried about paying your heating bills the Home Heat Helpline is here to lend a hand.
Freephone 0800 33 66 99 or visit homeheathelpline.org.uk

 Other Associations:
BSSA 0121 478 0222
(british sjogrens syndrome association)
Fibromyalgia association
0870 345 2322
Lupus UK 01708 731251
PAH-UK 0800 3898 156

 NHS Direct: 0845 4647 

 Prescriptions Prepayment and Exemption:
Click Here...

 FESCA Newsletter
June 2010 newsletter

 Sponsor Online:

Make a donation using Virgin Money Giving


 Calendar of Events:calendar
Click here for our calendar of events.


 web shop!





 Donate Online:
Click here to make a donation.


 Collecting Boxes:
collection boxes Get free collecting boxes! More»





 Buy a Rose!
buy a roseOrder The Scleroderma Society Rose. More»

Also see our Scleroderma Society Rose Notelets. More»




Scleroderma Society Assistance Fund

The trustees have set up an Assistance Fund for members of the Society. Although applications must come from and include a member, non-members can benefit from the award as well.

It is hoped that the fund will help members with expenses they are unable to meet and have arisen as a result of having scleroderma.
For example, the Fund would consider applications for:

  • assistance with the purchase of equipment to aid mobility including special/adapted footwear
  • assistance with the purchase of specific clothing
  • assistance with utility arrears, in extenuating circumstances
  • assistance with accommodation expenses incurred as a result of hospital visits for the person with scleroderma and/or the carer

The Fund will not accept applications for travel to/from hospital as there is government assistance for this at www.direct.gov.uk , where you should search for "NHS travel costs".

Application forms must be completed for every request and requests over £100.00 will have to be substantiated with additional paperwork such as bank statements, appointment letters etc.

The trustees will decide upon each application and will confirm the outcome in writing, however if an application is denied, no explanation as to why will be given. This is to deter the information being used to make bogus claims. .

Our helpline call takers will be able to take requests about making an application but they will not be aware of how any application is progressing, whether it will be accepted and why one has been declined so please do not telephone the helpline for this information.

Claims have to be concluded within three months of the initial application and will be closed if they are not. Once closed, the application will not be reopened and no further application for the same reason will be accepted.

A member may make no more than two applications per year, with the year commencing from the date of the first application.

If you have any queries or wish to make an application, please email info@sclerodermasociety.co.uk .
If you are not able to email, telephone the Society on 0207 7000 1925.


   About Us    About Scleroderma    Join Us    Useful Links    Fundraising    Awards    News    Message Board    Local Groups    Contact Us