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The Scleroderma Society has been supporting people with scleroderma since 1982. In the past thirty years we have supported thousands of people through our helpline, our publications, our forums and through the research that we have helped to fund. We are now looking forward to the next 30 years. After 3 decades of being entirely volunteer run we have just employed our first member of staff. We have done this because we feel the Society can and must increase its activity considerably both in the funding of future research and also in the support of people impacted by scleroderma. We couldn’t do any of this without our members or supporters who continue to work tirelessly raising both funds and awareness. Scleroderma is a journey with many ups and downs. At the Scleroderma Society we are there with you for that journey.
We are all about scleroderma!
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Latest NEWS
25th February 2013
All roads lead to Rome
Save the Date! The Third World Systemic Sclerosis Congress is to be held in Rome in February 2014, when Rome is golden and the north is still under the canopy of white winter. Two concurrent sclero... [more]
All roads lead to Rome
Save the Date! The Third World Systemic Sclerosis Congress is to be held in Rome in February 2014, when Rome is golden and the north is still under the canopy of white winter. Two concurrent sclero... [more]
23rd January 2013
Fatigue in scleroderma survey
Fatigue is a big issue for many people with scleroderma. Yet with no accepted international definition it is still very difficult to treat. We are looking into how fatigue affects peopl... [more]
Fatigue in scleroderma survey
Fatigue is a big issue for many people with scleroderma. Yet with no accepted international definition it is still very difficult to treat. We are looking into how fatigue affects peopl... [more]
6th January 2013
RideLondon 100 for the Scleroderma Society
Inspired by the Olympic cycling? Want to raise money for the Scleroderma Society? Here is your chance.... [more]
RideLondon 100 for the Scleroderma Society
Inspired by the Olympic cycling? Want to raise money for the Scleroderma Society? Here is your chance.... [more]
4th December 2012
Have you got a story to tell?
Have you got a literary bent? Or, maybe just a story to tell? Well, why not enter for the Edgar Stene Prize 2013? This year, the theme is “Growing up or growing o... [more]
Have you got a story to tell?
Have you got a literary bent? Or, maybe just a story to tell? Well, why not enter for the Edgar Stene Prize 2013? This year, the theme is “Growing up or growing o... [more]
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