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info@sclerodermasociety.co.uk Tel: 020 7000 1925 Registered Charity No: 286736 |
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About The Scleroderma Society |
 Advice Line: Scleroderma Society Advice Line is now 0800 311 2756. Calls from UK mainland are free. Our New Booklet: Understanding & Managing Scleroderma New Leaflet:Physiotherapy & Scleroderma Calendar of Events: Click here for our calendar of events. web shop! Donate Online:
We have signed up with Justgiving.com a great on-line sponsorship and donation site. Collecting Boxes: Get free collecting boxes! More» Buy a Rose! Order The Scleroderma Society Rose. More» |
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ArticlesABOUT SCLERODERMAAn overview of scleroderma. Living with Scleromyxedema By Ann Harris - Jan '07 CALCINOSIS Summary of the talk presented to the London and South East Group December '06 by Geraldine Brough DIGITAL ULCERS & SCLERODERMA A survey by Alan J Silman EMERGING HORIZONS IN PULLMONARY HYPERTENSION An article by Dr. Dev Mukerjee, MRCP, Clinical Research Fellow, Royal Free Hospital, London. From the Scleroderma Society AGM in Oct 02 Early Diffuse Scleroderma - Update on Observational Study of Treatment April 2007 FESCA UPDATE GILS International Conference, Milan 10th March 2007 FREE RADICALS, OXIDATIVE STRESS AND SCLERODERMA This short article contains the main points raised at the last meeting of the Scleroderma Society last month. It is related to joint work being undertaken with Professor Black and Dr Abraham in the Department of Rheumatology at the Royal Free Hospital. GUT PROBLEMS IN SCLERODERMA Article by Dr Geraldine Brough FRCP, Presented at the Royal Free Hospital 4 th March 2004 INTERNET AS A TOOL FOR PATIENT SUPPORT GROUPS TO PROVIDE QUALITY INFORMATION M. Dziadzio 1 , K. Fligelstone 2 , R. Smith 1 , S. Ensz 3 , C. Denton 1 , C. Black 1 1 Centre for Rheumatology, Royal Free Hospital, 2 Chair, Scleroderma Society, London, United Kingdom, 3 International Scleroderma Network, Edina, MN, United States INTERNET AS A TOOL FOR PATIENT SUPPORT GROUPS A study of the delivery of information about Scleroderma over the internet. KIDNEY INVOLVEMENT IN SCLERODERMA A short article about kidney problems related to scleroderma. LUNG TRANSPLANTATION IN SCLERODERMA Reproduced by kind permission of the Scleroderma Foundation of Victoria Incorporated. MANAGEMENT OF BREATHLESSNESS IN SCLERODERMA An article by Dr. Dev Mukerjee BSc, MRCP. MIAMI EXPERIENCE Article by Joanna Smee Pulmonary Hypertension Nurse MICROCHIMERISM AND SCLERODERMA An article by Dr Magdalena Dziadzio. April 03 NATIONAL SCLERODERMA REGISTER A national register of patients with the rare but potentially fatal connective tissue disease, scleroderma, is being set up by doctors at the Royal Free Hospital in Hampstead, with the aim of boosting vital research. NERVOUS SYSTEM INVOLVEMENT IN SYSTEMIC SCLEROSIS Article by Dr Voon H Ong, Research Registrar, Royal Free Hospital. NEW PATIENT'S CORNER By Kay Atkin THE ROLE OF OCCUPATIONAL THERAPY IN SCLERODERMA Presented at the Society AGM by Phoung Quach Royal Free Hospital London THE ROLE OF PHYSIOTHERAPY Presented at the Society AGM by Mary Hanania, Royal Free Hospital London Treatment for Pulmonary Hypertension related to scleroderma in 2006 The National Pulmonary Hypertension Unit and Centre for Rheumatology, Royal Free Hospital,London, NW3 2QG, UK PROGRESS IN SCLERODERMA DURING THE PAST 20 YEARS (Part One) The first part of the serialisation of Professor Carol Black's talk at the Scleroderma Society's 20th AGM on the 5th October 2002 at The John Lister Post Graduate Centre, Wexham Park, Reading UK. It has been transcribed (with edits) from a recording taken at that time. The next part on Research will be in the Spring 2003 issue of Scleroderma News. PROGRESS IN SCLERODERMA DURING THE PAST 20 YEARS (Part Two) Article by David Abraham (Reader Rheumatology Dept Royal Free and University College Medical School) QUALITY OF LIFE IN SCLERODERMA Article by Naomi Reay RGN, RSCN, DN, SRCh, BSc, MA University of Leeds, April 06 SCLERODERMA EDUCATION/SELF MANAGEMENT PROGRAMME Sister Sue Brown Royal National Hospital for Rheumatic Diseases, Bath, Oct 05 SCLERODERMA-LIKE DISORDERS OR PSEUDOSCLERODERMA SPECTRUM DISEASES Article in memory of Patricia Holloway by Dr Magdalena Dziadzio, Azienda Sanitaria Unica Regionale, Marche, Ancona, Italy SCLERODERMA IN 2005 - Have We Made Progress ? Summary of the talk presented at the Scleroderma Society's AGM/Conference on 30 th July 2005 by Professor Dame Carol Black DBE, CBE, MD, FRCP. SKIN INVOLVEMENT - THE HALLMARK OF DIFFUSE SYSTEMIC SCLEROSIS Article by Dr Lynne Shand, - Clinical Research Fellow, Scleroderma Clinic, Rheumatology Dept, Royal Free Hospital The Systemic Sclerosis Trial of Events and Progression (SSTEP) study The Systemic Sclerosis Trial of Events and Progression (SSTEP) study commenced recruitment of patients in February 2002. It was designed to determine whether oral iloprost therapy is more effective than placebo in reducing Systemic Sclerosis disease progression, in particular in relation to reducing the risk of patients developing coronary and cerebrovascular disease. SURVIVING CHRISTMAS WITH SCLERODERMA From The London & South East Christmas Meeting. It applies to any festive / celebratory occasion though! TAKING STEPS TOWARDS HEALTHIER FEET |