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Publications

We have a wide selection of information leaflets on scleroderma as well as a comprehensive booklet, entitled "Understanding and Managing Scleroderma". You can download the leaflets and the booklet from the links below (pdfs), or order by telephone on 020 7000 1925.


 

For Comprehensive Information On All Aspects of Scleroderma

Understanding and Managing Scleroderma -This is a comprehensive booklet providing information about scleroderma, in order to help people understand the complexities of the condition. It answers some of the questions most frequently asked about scleroderma and covers all aspects of the different types of scleroderma, so not all sections of the booklet will be relevant to everyone and readers should note that the full extent of symptoms discussed in the booklet will not be applicable to everyone with scleroderma. The booklet mostly deals with systemic sclerosis but there is also a small section on localised scleroderma.

 

 

For Information On Localised Scleroderma:  

Localised Scleroderma (Morphoea, Linear, En Coup de Sabre)

 

Physiotherapy and Scleroderma (for both localised and systemic scleroderma)

 

 

For Information On Systemic Sclerosis (both limited and diffuse):

Systemic Sclerosis an overview (with small section on localised scleroderma)
 

The Fingers in Systemic Sclerosis

 

The Foot in Systemic Sclerosis

The Gastrointestinal-Tract in Systemic Sclerosis

The Heart in Systemic Sclerosis

The Kidney and Systemic Sclerosis

The Lungs and Systemic Sclerosis

Oral Problems in Systemic Sclerosis

Physiotherapy and Scleroderma (for both systemic and localised scleroderma)
 

Pregnancy in Systemic Sclerosis

Pulmonary Hypertension in Systemic Sclerosis

Sexual Health in Men with Systemic Sclerosis

Sexual Health in Women with Systemic Sclerosis

The Skin in Systemic Sclerosis

Childhood-Onset Scleroderma

Hospital Checklist for People with Systemic Sclerosis

The Scleroderma Society is affiliated to these not-for-profit organisations:

arma fesca Helplines Partnership National Voices

 

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