"The person who spoke to me on the helpline was the only other person I had spoken to with scleroderma at that point. All of a sudden I did not feel nearly as alone."
The Scleroderma Society Helpline telephone number is 0800 311 2756. Calls from the UK mainland are free. If you cannot get straight through, it is probably because we are already on the telephone, so please leave us a message and we will get back to you as soon as possible. At other times please leave a message and we will call you back.
For other enquiries of a general nature, please contact the office on 020 7000 1925.
The helpline operates from 9am to 9pm every day and is now approved by the Helpline Association. This means that we conform to standards of excellence in how we operate and all our volunteers have regular training.
We have seven volunteers manning the helpline now from Monday through to Sunday (9am to 9pm) on a weekly rota basis. Liz, Kim, Belinda, Paula, Penny, Rosemary and myself - you can see a bit more about us below. None of our volunteers are medically qualified and therefore we cannot give advice on drugs, medical diagnosis or other areas that must be left to the professional experts. However, we can listen to you, point you in the right direction through the medical maze and give you information and most importantly support.
The person you talk to may also have Scleroderma but as we know everyone is different and the manifestations from
patient to patient are varied and complex. Therefore, we refrain from swapping backgrounds and symptomsí but try to listen positively to your issues and try to help you with your particular problems.
You maybe worrying about a symptom, where to get help, or you may want hint and tips that we as a group have come across. For example, special aids to help with your daily life, cooking utensils with special handles, opening devices or maybe what creams are available to moisten the skin.