Helpline 0800 311 2576
020 7000 1925
0800 311 2756
9.00am to 7.00pm
Calls from UK mainland FREE
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We are a very small team so please bear with us if we do not answer the telephone immediately. Please leave a message and we will get back to you as soon as possible. If you are looking to contact someone in particular, you can send a letter to the Society or contact indiviuals by email:


The Scleroderma Society

Bride House

18-20 Bride Lane




Phone: 020 7000 1925

General Enquiries:



Helena Rozga

Susie Hoare

John O'Brien

Office Staff:

Amy Baker, Charity Development Manager

Chloe Kastoryano, Policy and Research Advisor

Amy Barrick, Office and Administration Manager


The Scleroderma Society Helpline telephone number is 0800 311 2756. Calls from the UK mainland are free.   

We operate a freephone helpline if you need to talk to someone about scleroderma. The helpline is run and managed entirely by volunteers, the majority of whom have scleroderma. It is not possible for us to offer medical advice, but we can offer you an empathetic ear to listen to your concerns and point you in the right direction for further information if appropriate.


We value your feedback

We appreciate the opportunity your feedback gives us to improve our charity. If you have any questions, comments or queries please do get in touch.

How to complain to the Scleroderma Society:

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The Scleroderma Society is affiliated to these not-for-profit organisations:

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